Today, things were a little slow to get started in our morning rounds, so I um...took over.
Sam is a 6-year-old boy with AML here for Intensification Round 2, awaiting counts recovery. Today is Day 28 and he has an ANC of 80 and he is afebrile and he wants to get the heck outta here.
They laughed and agreed that today was not the day to go home. A jump from 18 to 70? Huge. A jump from 70 to 80? Not enough to kick a kid to the curb.
Darn. (Okay, I probably had stronger language in my thoughts...but this is a G-rated blog!)
So we got about our day. After Teacher Theresa's time, we had to head downstairs for an echocardiogram and an EKG in the Herma Heart Center.
It's pretty easy and it got us off the floor during the day (when we're normally not allowed to go!), which had its ups and downs. Sam really didn't want to go back to the floor. It helped that on our way back up, we ran into Miss Nancy, the music therapist. She and Sam talked about the music of the Harry Potter movies for a few minutes and then she promised to stop by his room later.
We had a lovely last-minute visit from Marci and Lindsay who were driving through the great state of Wisconsin on their way to their brother Adam's wedding in Minnesota! (Mazel tov, Adam and Melissa! Wish we could be there to celebrate with you!)
Sam resisted doing schoolwork today, but after a rousing 5 rounds of chess with Zeyde...he gave in and did some work.
Lucky for us - we were the only ones!
Then Dr. L came to visit for what has become our regular game of Monkey-In-The-Middle-Sam-Makes-Up-New-Rules-To-Confuse-Delight-and-Annoy. It's a long title, but I think it will catch on soon. At least it wears
One of the songs that Sam and Miss Nancy sang together today rang true for me tonight...
Whoa...We're half way there
Livin on a prayer
Take my hand and we'll make it - I swear
Livin on a prayer
We've got to hold on to what we've got
Cause it doesn't make a difference
If we make it or not
We've got each other and that's a lot
For love - well give it a shot
We've got to hold on ready or not
You live for the fight when it's all that you've got...
We might be more than halfway there but we sure are livin' on a prayer around here....ready or not.
Keep on praying...