"Have fun!" they said cheerfully as they tried to push us out the door.
"Wait a minute!" I said.
I dragged one of the nurse practitioners into our room and I asked her a series of questions, with both Michael and I hanging on every answer:
Can he go out to eat? (yes)
Can he go to the park? (yes)
Can he go to the movies? (yes, if it's not a very busy first-day-the-movie-is-just-released kind of theater)
Can he ride his bike? (yes)
Can he go swimming? (no. I threw that one in even though I knew the answer.)
Can he go to visit camp? (yes)
We were relatively surprised by the answers, but we just took a lot of deep breaths and plunged in.
When they released Sam this time, I didn't run through the list. (We have done this before.) But I did mention something about staying home to one of the nurse practitioners and she said, "We don't want you to seclude yourselves at home. He can go out, just be careful."
Ah...."be careful." Never before have those words been so open to interpretation.
I knew bringing Sam home this weekend that his ANC was under 200. But frankly, I still don't know what it is. We know it's Low. He has, in essence, almost no immune system.
On Saturday, we went out.
To a park.
To the library.
I kept looking over my shoulder, nervously worried that we might run into one of our oncologists....who happen to live in the neighborhood. What would I say? Would they scold me? We washed our hands a lot. Maybe they would catch us in that act and forgive me.
And then today, we went to clinic for Sam's chemo and checkup. Dr K came in and said, "how's it going? I expected to see you around town!" So much for my worries about getting caught!
Updates from Hotel Maison de Casa House:
The proprietors have been lovely and accommodating. They both cook and clean up. Amazing!
I might have looked over my shoulder a few times....
|Photo credit: Karen|