Sunday, June 2, 2013

Persistence

Refractory: resisting control or authority; resistant to treatment

Our doctors refer to Sam's leukemia as refractory...and persistent.

It has not gone away. It continues to resist the treatments that have been thrown at it.

But we, and perhaps more importantly our doctors, are equally as persistent.

A new plan is in place. It is different. Very different. And yet, the goal is the same.


We work to get him to a place where we can put the transplant into action.


We don't have all the answers yet.

But we have faith and trust in the medical team that we have in place.

Our journey has many miles remaining...we begin this week.

15 comments:

  1. Hang in there! You Will beat this evil disease! Our love and prayers are with you! Hug Sammy for us and remind him that Superman didn't always have it easy, but he always won.
    Love, Bobbi

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  2. And we will be persistant in our prayers and wishes. Sam is strong and will get through this.

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  3. Sending love. Sam is in our prayers as always.

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  4. Once again, I remind you of my niece. A 7 year odyssey filled with set backs & good news & frustration, joy & tears, anger & understanding. She got to her transplant and now, years later, she is beautiful & strong & faithful & serving in Rwanda helping with nutritional needs. I wish for you LESS than a 7 year odyssey, yet with an outcome just as beautiful & glorious.

    And, btw, you don't call him SUPERman for nothing.

    Refuah Shelimah.

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  5. Sending you strength and flexibility and persistence to meet the challenges ahead. Most of all, and as always, I send you xoxo from NYC!

    ~ Jane.

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  6. Holding y'all in my thoughts and in my prayers. Always.

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  7. Love, strength, patience, humor, and healing ... so many prayers coming your way. We're holding you all in our hearts.

    - Stephanie

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  8. I'm with you all the way in my thoughts and prayers. Your medical team, your own strength and Sammy's persistence will win out. Much love.

    Fran

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  9. Always in our thoughts. Always in our prayers.

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  10. We will be holding Sam--and all of you--in the Light as we Quakers say. Sending healing and love fromm across the ocean.

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  11. Wishing Superman Sam a journey of hope, faith, and healing. My daughter is approaching her 7th year in remission from ALL and we often could never see the light of hope during her treatment phase. But today she is a healthy girl, and tomorrow when I meet with Congressmen on Capitol Hill w the LLS to advocate for patient rights and access to therapies, I will keep Sam and my daughter close in my heart. God bless you! -- the Sierens family, Glencoe

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  12. Love and hugs to all of you! We are keeping you in our thoughts and prayers.

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  13. Sending more and more thoughts, hugs and prayers. Sam is one tough piece of cookie dough, and so are you, even when it gets so scary and difficult....thinking of you always.

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  14. We say the Shema each night, and say an extra few words of healing for Sam. Strength and prayers!

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