It wasn't the best day.
Sam's continued fevers bought him a CT scan this morning. His extended neutropenia leaves him open to all sorts of infections, but in particular, they are worried about fungal infections in the lungs and/or sinus cavities. Remember, he's been on an anti-fungal medicine every day since he was released from the hospital in June, and he's basically been neutropenic (low counts) since then.
The scans came back mostly normal, with just one tiny spot that may or may not be a problem...and the continued fevers with no other obvious cause suggested that some broader anti-fungal coverage might be in order.
Well, it turns out that Sam is allergic to the anti-fungal drug they gave him. He reacted with some tightness of breath and discomfort -- so they quickly stopped the drug, which helped him right away.
If the first drug was Pepsi, we moved onto Coca-Cola. But apparently, Sam doesn't like Coke any more than Pepsi, since he responded pretty badly to that one too. (This time, there were rigors (shaking) and a super-high fever, as well as a lot of vomiting, even though there's nothing in his stomach.)
So...I think we're going to look for a Plan B in terms of anti-fungal coverage. We'll stick with the original medicine, and tomorrow I'm sure there will be a discussion of what to do next. Luckily, they always seem to have a plan C...D...E...
Scary? Doesn't even begin to describe it.
Before all of this, the doctor told me to "buckle my seatbelt."
Have I mentioned that I hate roller coasters? I get carsick with the least twisty-turny road.
We're good at looking at the upside of every day, and its been rare to have days like this one for Sam, where he's really quite sick and uncomfortable all day. I'm trying...today was hard, no question. He's still pretty miserable and it is hard to watch him like this. Even SpongeBob couldn't perk him up or the chance to kick my butt in Monopoly.
On the upside, his white blood count went up to .3 -- so that's something to cheer about. So even though he feels like a garbage truck ran over him, his cells are doing their thing...
Here's hoping that Monday morning brings a perkier Sam.