While today started out well, it had a few rough patches.
And the doctors and nurses are so wonderfully kind to remind me that these ups and downs are to be expected.
But that doesn't make it any easier when Sam shows me his pillow, covered in little hairs. Yep, that's right, his hair is falling out.
"So let's shave it off!" I say, to my child who has always asked for his buzz cut to be shorter and shorter.
"No. I don't want to be bald."
"It will grow back."
"It will look great."
"You'll look just like Uncle Josh."
"We can decorate your head."
None of those worked.
And the hair kept falling out...into his eyes and his mouth and all over the pillow.
He wouldn't take a shower to wash it away.
He didn't really find a hat that was comfortable to help keep the hair out of his face.
And he wouldn't let me shave it.
He was generally disagreeable all day long.
And who can blame him? I don't want to give up my hair either.
(Which, by the way, is a different project in the works for the future...stay tuned.)
Finally he agreed that tomorrow when Uncle Josh arrives, head-shaving can commence.
Until then....a little bit of extra itching won't hurt him.
More blood transfusion today...more pain meds....a few happy visitors and a lot of just hanging around. Here's hoping for a better tomorrow.
In other news, Bubbie and Zeyde and Grandma have embarked on a project of their own.
Perhaps you've heard that Stephen Colbert wrote a book?
If you'll recall, Zeyde read it to Sam a little while back:
Think he'll get a kick out of our little Superman Sam? Maybe we can get Stephen Colbert to pitch for bone marrow registry. It's one thing when Good Morning America does it. (Yes, that is Children's Hospital of Wisconsin and our friend Dr. Dave!)