A nice quiet day on the HOT Unit. Still no counts, some more not-quite-normal-temps-but-not-quite-worrisome-fevers, a few more hamburgers eaten, and a generally upbeat day for Mr. Sam and his crew of loyal attendants. Or is that royal? Same idea, right?
There was schoolwork and some art projects...
At some point today, we noticed that Sam's hair was falling out. Sam and Uncle Josh had shaved off most of it, but now we are at the falling-out stage. So Sam did a lot of this (below) trying to get the hair out. Mostly because it was fun to watch the little flecks of hair all over the white bedsheet!
But then it was back upstairs for what ended up being quite an adventure: hair removal! We had tried a bath (no help) and just plain head-rubbing, but these didn't get a lot of hair off the head. And frankly, those little hairs were getting annoying. So I suggested duct tape. At first Sam thought I was crazy! But then I showed him how (a la a lint remover) and he was intrigued enough to try....three rolls of duct tape later and his head is much more....bald.
Otherwise go to: http://youtu.be/VFda-3vjuHM)
That occupied our time for a while until we finished our laps for the night. Sam decided that 30 was today's magic number, so we did it in a few batches, but with the bulk of the laps before bed!
Even in the midst of neutropenia (that's a zero immune system), even in the midst of nausea and discomfort and separation and loneliness....there is light. Sam is our light. And we are so very grateful.