So far, no real answers at all.
Sam's line was removed. (That darn line was put in on April Fools' Day....I think that was its problem.)
The endoscopy was performed. (Nothing immediately visible but biopsies were taken, which was the plan.)
They put in a peripheral IV (temporary IV in his hand).
He hated every single moment of it, except the parts that he slept through.
He woke up from the anesthesia furious and uncomfortable.
He hates the IV. He hates the way the scope made his throat feel.
Usually I can come up with some way to frame a day, to put it all in perspective.
The only perspective I can come up with is the mantra I keep repeating: he is NOT the sickest kid around. Not even close.
It doesn't much help when he's miserable and unhappy....but I try.
Man, do we need a break. Hopefully everything will feel brighter in the morning, most particularly Sam.
I distracted myself today by counting t-shirt and sweatshirt sales. You guys are impressive and amazing. So far, this little campaign has raised almost $1500, and we still have about five days to go. So there's something. Feel free to tell your friends.
G-d willing a refuah shleimah and feel free to rant and cry.ReplyDelete
Oy vey....not the day I had in mind for you. Perhaps it's just delayed one day.ReplyDelete
thinking of you guys always and hoping that today is a better day than yesterday!ReplyDelete