The art of being an incredible pediatric nurse, doctor, caregiver, or anyone else working at a children's hospital is a skill to be prized above all others. It takes a chosen few who dedicate their lives to caring for our most prized possession, working with parents at their wits ends and children fearful of all they don't understand. They do their best to minimize the pain and humanize an experience that is an alien world to all who enter it. They all have my undying gratitude and love.
Apparently you can't have be a super hero without a theme song or have a team without uniforms. Sam had two incredible visitors today. My incredible friend and colleague, Rabbi Andrea Cosnowsky, stopped by just to sing a few songs for Sam and tell him about his personal theme song she is writing for him. Sam was so inspired by the songs he took a walk with us downstairs to see his friend Jacob, Rabbi Andrea's oldest son.
|Rabbi Andrea working on my Super Hero Theme Song!
After lunch Rabbi Steven Lowenstein showed up to show the work he'd done on Sam's team attire. If there's anything we all know about Rabbi Steve it is that he LOVES designing team jerseys.
|Team Sam Hats and T-shirts!
|Rabbi Steve Thinks of Everything!
Sam was frustrated by his slipping mask, but amazing as he slowly removed all the adhesive protecting his central line. He then gritted his teeth as our charge nurse cleansed and prepped the area and applied the new adhesive guards and protective shield.
This half hour threw Sam back into his grumpy "I hate this place" mood. He slowly crawled into his reclining chair and asked for me to unpause the movie he was watching (Big Miracle). I handed him his water and a new bag of popcorn. Slowly the food worked its way into his system and his anger subsided just before Uncle Josh made his appearance for the night. Sam's mood returned to the rest of the day's good feeling as the jokes and ribbing shot back and forth between he and his uncle.
I left my two stooges with good humor, good laughs and a sigh as I regretted having to drive home and miss all the fun.
Once again I extend my infinite love and gratitude to everyone who has sent a card, a picture and some amazing gifts. We appreciate all your love and support. I know you all understand it is nearly impossible to thank you all with individual thank you notes, but please know the outpouring of love, prayers and gifts is most appreciated. If you find yourself thinking of making charitable donations we are most grateful for everything Children's Hospital Wisconsin has done for us and everything the MACC Fund does to find a cure for childhood cancer and blood disorders.
May all your blessings and prayers be reflected upon you one hundred fold. May all our unconditional love overflow to help heal all those in need in our lives and continue to make the world a better place. Sam's illness is proof that changing the world for good begins with one small person, even one small ill cell that has encouraged tens of thousands of people to pray as one (while dressing in Super Hero costumes at the same time! How cool is that?!).