There are still people coming in and out with medicines and tests. There is still a flurry of things to be done. Nevertheless, we wanted Shabbat.
There was challah, brought from home. The batch was split into two, one challah in Milwaukee, one at home. Sam's favorite turtle held the challah for us.
But then a few special visitors came, and that brightened the whole day for him:
|Ready to roll
|Sam with his superhero team
|A Shabbat walk
They also got to eat some of his candy...and so did he.
He was so happy to have them here. It's amazing how much time my kids spend with each other, and Sam and Yael have barely ever spent more than a day or two apart. I hadn't given that much thought until now. Solly was a little tricky. He wanted to touch and taste everything, which doesn't much work in a hospital. We're going to plan a visit for this week that is only for David and Yael...we'll leave the little guy at home.
After we got back from our little outing, I was exhausted...so Sam had a little quiet chatting time with Uncle Josh. And he ate a McDonald's fish sandwich and french fries. It was the first real food he had eaten all day.
It's getting a little easier for Sam to deal with all the challenges that are presented to him. He hates to take meds by mouth, and so we're finding new ways to make that work. He isn't so interested in eating, but we've already planned tomorrow's breakfast menu so hopefully that will help out with eating. The doctors are trying to avoid a feeding tube, but sometimes that is inevitable, we're told. Sigh...many pieces of this seem unavoidable. We have a lot of trust and faith in the work of the doctors and nurses...
We had some lovely visits from rabbi-types and other friends before and during Shabbat, so many wonderful notes and coloring books and gifts...Sam is starting to feel the love, and we are so very grateful. Thank you to everyone! I know I can't thank you all personally, so please know that we are so very grateful for everything you are all doing, for Sam and for our whole family. We truly felt all the prayers for healing that were said all over the world on this Shabbat.
May this pleasant Shabbat ("a good day," as his nurse called it) be a harbinger of the whole week ahead!